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Arachnoiditis: Trying to find a specialist

Spine Health | Last Active: Mar 31 2:11pm | Replies (325)

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@cwallen9

I know for sure that a cervical steroid injection (with Kenalog) caused my severe, painful neuropathy. I had bad neck pain, but no neuropathy before the shot. The neuropathy started immediately after the shot. I have not found a doctor who is willing to state that the shot caused my neuropathy, which is very frustrating. I believe that I may have arachnoiditis of my cervical spine.

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Replies to "I know for sure that a cervical steroid injection (with Kenalog) caused my severe, painful neuropathy...."

You should find a doctor who is willing to order an MRI w/wo contrast. It is the only way you will confirm that diagnosis
As one neurologist explained to me : your nerves are all clumped up
That is the way my doctors at the Mayo Clinic diagnosed it
Until then no doctors wanted to order the MRI with contrast
Good luck to you with all my heart !

My husband went through the same thing. We feel the doc that injected his neck knew something went wrong because he kept him after the injection for quite some time and had a nurse checking his feet every few minutes. Now he doesn't know him. His problems started about an hour after that injection. As assistant to a surgeon to did spinal stenosis surgery on him told me there was no way that injection should have had anything to do with his feet. Now hte has Arachnoiditis - something he will struggle with for the rest of his life.