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← Return to COVID vaccines and neuropathy
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Thank you so much for your response. I am so sorry you are having this experience but it does seem like with your underlying issues foraging ahead with the second vaccine was necessary.
I knew nothing about neuropathy before this either! I am in another support group as well but I am thankful for this focused space and have found a lot of helpful information. I finally posted the other day because I had a backslide and was discouraged that no one seems to be getting better so I thought I would ask.
I am not seeing a rheumatologist at this time. I had a positive autoimmune titer in my bloodwork in 2020, that was negative 6 months later because of this 3 rheumatologists denied me early on (my PCP referred me right away after issues started with the vaccine). My neurologist has basically sent me on my way saying, “give it time.” Even after being admitted to the hospital. He did refer me to the NeuroCovid clinic at Yale and I have an appointment in March, 2022, but I am praying I am improved my then.
I am basically managing all of my symptoms with a Naturopath and a Chiropractic/Functional Neurologist, who feels this should be treated as autoimmune. I have considered seeing an allergist/immunologist as I have some new symptoms which seem to be histamine related.
I hope you see continued healing and find a rheumatologist that provides you with a healthful way forward. Best wishes to you also!!
Replies to "Thank you so much for your response. I am so sorry you are having this experience..."
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Ugh. March 2022?! That’s ridiculous. I just fail to understand the medical world when it has to deal with actually addressing something out of the usual heart disease, cancer, etc. I do understand that autoimmune diseases can be hard to diagnose and treat, but when the providers don’t even try it’s disheartening.
Did you ask your neurologist just how much time you’re supposed to suffer?! There are certainly many people on this discussion whose symptoms have not gone away.
I’m glad you’re seeing a naturopath. Have they discussed your histamine reactions with you? I too have strong histamine reactions, I saw an acupuncturist for several years who was beneficial in treating it. Although it’s gotten worse again since I’ve contracted Sjogren’s. I think that adopting the diet you also observe and also walking has helped my symptoms some, much of the research out there on PN and autoimmune diseases points to the benefits of these two factors, as do many on Connect.
I too get rashes in the sun…for me this is a Sjogren’s thing. Sjogren’s, as with some other autoimmune diseases, is difficult to diagnose by just blood labs and can be a systemwide disease with many different manifestations. I hope you continue to make progress, but if not convince a rheumatologist to see you.
Stay positive on your journey to health.