Thank you so much for your response. I am so sorry you are having this experience but it does seem like with your underlying issues foraging ahead with the second vaccine was necessary.

I knew nothing about neuropathy before this either! I am in another support group as well but I am thankful for this focused space and have found a lot of helpful information. I finally posted the other day because I had a backslide and was discouraged that no one seems to be getting better so I thought I would ask.

I am not seeing a rheumatologist at this time. I had a positive autoimmune titer in my bloodwork in 2020, that was negative 6 months later because of this 3 rheumatologists denied me early on (my PCP referred me right away after issues started with the vaccine). My neurologist has basically sent me on my way saying, “give it time.” Even after being admitted to the hospital. He did refer me to the NeuroCovid clinic at Yale and I have an appointment in March, 2022, but I am praying I am improved my then.

I am basically managing all of my symptoms with a Naturopath and a Chiropractic/Functional Neurologist, who feels this should be treated as autoimmune. I have considered seeing an allergist/immunologist as I have some new symptoms which seem to be histamine related.

I hope you see continued healing and find a rheumatologist that provides you with a healthful way forward. Best wishes to you also!!