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← Return to COVID vaccines and neuropathy
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@amybeau, hello. I got my Pfizers in Dec/Jan. I quickly (within a week) began having burning sensations in my hands and feet (which to a lesser extent might also pop up just about anywhere on my body), weak feeling in right lower leg, and a little later (about 2 weeks) mild intermittent twitching in right leg and foot. I also get other strange sensations in my legs and feet, hard to explain. And I have the feeling that my whole body is pulsating at times. But very little actual pain thankfully. I underwent just about every neuro diagnostic there is, except for LP. The final consensus is that the inflammation from already existing spinal problems and nerve impingement in my lower back were intensified by the vaccine. I knew I had lower back and neck issues because I have degenerative joint disease. However to go from only experiencing localized pain to these other symptoms in my leg and throughout the rest of my body was shocking, to say the least. It has been a very dark time for me and one in which I have at times been convinced that I have some ominous motor neuron disease. Here I am nearly 9 months later, and just in the last couple of months I feel I’ve seen a big improvement in the leg weakness and twitching. The burning and other sensations are still with me for the most part. What I’ve done: tried to become more active. Al my life I’ve been pretty fit and active until about the last 2 years. I have been getting cardio workouts that don’t hurt my back and resumed yoga at least once a week. I don’t eat a special diet just try to basically eat healthy, although at different times throughout this ordeal I have tried cutting out sugar, carbs, gluten and alcohol and nothing had any effect. I take meloxicam (NSAID for my back), multi vitamins, turmeric, magnesium and ALA daily. A few times per week I’ll also take extra B complex and D vitamins. About every other night I take appr .25 mg clonazepam to help sleep & muscle relaxation. I have on 2 different occasions tried to take Cymbalta and I simply cannot tolerate it. I wish I could because it had a really good effect on my back pain! However I am apparently what’s classified as a poor metabolizer and I have lots of trouble with certain meds. My neuro has mentioned gabapentin a few times but I’m just not going there. So overall, I guess I am improved in some respects and unchanged in others. Thankfully I no longer feel I have something that is going to kill or cripple me. I wish this hadn’t happened but if it doesn’t get any worse I can certainly live with it. Hope my story was helpful and best wishes to you.
Replies to "@amybeau, hello. I got my Pfizers in Dec/Jan. I quickly (within a week) began having burning..."
Wow... Our stories are so very similar. I would love to know more about your story.
Thank you for sharing your experience, sounds VERY SIMILAR to my story, and seems you have had same thoughts that I do.
I guess all these symptoms are post covid?
I'm 2 1/2months post covid, I too had, and have, the bruising and nerve issues, including DDD in spine and neck, tingling, numbness, in hands, arms and legs (seems to come and go, changing intensity. As you said, difficult to explain precisely. Im on Mobic too, (I know Cymbalta well, Gabapenton too.) I was precovid diagnosed with Fibromyalgia. I also had head pressure and Vertigo seeing ENT first time today.
Hard to keep calm and patient when you're dealing with chronic pain and anxiety and the stress with these symptoms.
BTW, I had Moderna vaccine. No one wants to points blame of my symptoms POST-COVID to the vaccine but the virus itself. I was sick day 21 AFTER SECOND vaccine.
Keeping fingers crossed for answers.
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I am so sorry you are going through all of that! I too had terrible weakness in legs (couldn’t walk unassisted the whole month of July) but that has improved (not fully but improved). I also have internal twitching in both lower legs at rest, and I do have pain that travels (only legs). I have had normal EMG and bloodwork. The neurologist said inflammation from vaccine causing this and will go away over time. However, he has no answers for the rashes from the sun on my legs (even with clothes on) vestibular & autonomic issues (dizziness, brain fog) which also are improving though nowhere near where I would like to be 5 months out. I also turned down Gabapentin and am doing everything naturally (for now). I see a Chiropractic Neurologist for red laser therapy py and brain re training and a Naturopath for acupuncture and nutrition. I cut out sugar, gluten & dairy and am on some supplements. Some of the supplements are directed toward the issue, some are to maintain my immune system b/c I am not getting the second vaccine. I didn’t have any issues prior to this with the exception that I had a positive autoimmune titer in 2020 that was negative 6 months later. My CN feels we should treat this as autoimmune due to the positive result and the likelihood the vaccine triggered it. I hope you see continued improvement. I appreciate your reaching out and your story IS helpful. I am in another support group but find the focused support here helpful also. Based on your feedback I am going to try to start being active again. I have held off. I pray we all get better and stay safe. Best wishes to you too!!