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At a loss, multiple consultations still no answer...any idea?
Autoimmune Diseases | Last Active: Nov 28, 2023 | Replies (338)Comment receiving replies
I’m so sorry to hear that most of your symptoms have worsened but glad your pain is less. I can only add, for what it’s worth, that I drink a smoothie each morning containing whey, creatine, 2-3 fruits, peanut butter, cocoa, protein drink, ground flaxseed and almond milk. I also take Vit. C, D, magnesium glycinate every day and B complex 1-2 x month. I walk plus use exercise equipment plus some lite yoga/stretching at home. I’d been seeing a P/T for my neck which has been bad lately and will probably see a chiropractor, also my ears/jaw have been sore/tight lately. I think it’s SS. also mindfulness, and prayer help me. I don’t see my rheumatologist again until Dec. but I’m going to look for another one beforehand. I do hope you get some answers and feel better soon.
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Funny, i get up, do stretches, some qigong, and walk 2 miles, come back and make a protein drink, with cocoa nibs and non dairy milk. I have fruit with nuts, chia and ground flax seeds, and a little muesli for breakfast. Hadn’t heard of taking creatine before, so thanks, I’ll check it out.
SS has the oddest symptoms, I’ve had a sore throat and in the back of my mouth and jaw since May. It’s impossible to get to see an ear, nose, throat specialist. So, my primary has put me on antibiotics, nystatin, and Pantoprazole, but nothing has helped. I’ve had oral thrush, so I’m thinking it’s that.
I’m going to ask the neuromuscular doctor about PT for my sore back muscles. I hope you find a chiropractor helps your neck, jaw, and ears…do you think it’s muscular or a nerve issues? Have you had your parotid glands checked?
Stay positive!