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Second Nissen Failure... what are my options?

Digestive Health | Last Active: Aug 20, 2023 | Replies (36)

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@evanssandy34

I had a NF done 5 years ago and it has been the worst decision that I have ever made in my life. I'm so bloated that I look like I'm very pregnant. I can't burp, I'm not hungry ever and can only eat very little at a time. I'm malnourished and I'm not absorbing vitamin supplement that I have been given. I have been tested for any other reason for my bloating and tried ever medication to relieve the presser of sever bloating and nothing works. My doctor told me that he was out of tools in his tool box and sent me to a special GI doctor. He just looked and me and asked me what I was doing there. Named off every test that I have had and every medication that I have tried and said that he could not help me. I have to either live with this or have it undone and get my acid reflux back. I have never been treated like this by any doctor and made up my mind before I walk out the door to have it undone. I'm 49 years old now and refuse to live the rest of my life this way. The catch is that I called my sister and told her what happened and she said that both her and my niece have acid reflux too but it is because of LOW ACID. WHAT???? I HAVE NEVER HEARD OF THIS BEFORE! So you are telling me that every time that a doctor prescribed me antacids or every time that I took over the counter antacids, I could have always been making acid reflux worse. YEP, IT'S A GOOD POSSIBILATIY. WOW!! I came home and looked it up and she is right. Every last symptom of GERD! I'm so mad right now that I was never told this and NO Dr. even look into this and just sent me for the NF. I could not post a link for the symptoms and the at home test, for those of you that can burp. There just maybe hope for you after all. Google symptoms of low stomach acid and be shocked.

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Replies to "I had a NF done 5 years ago and it has been the worst decision that..."

// I have never been treated like this by any doctor //

Welcome to modern medicine, where physicians are only medical mechanics. Generalists can be consulted on technical questions and specialists will prescribe and operate. Period. We're on our own.

@evanssandy34 ... Welcome to the Club of Failed Nissens... I am 84 now.. had the Nissen 6 yrs ago for GERD.. at my local central Iowa Hosp./surgeon.. Again worse decision I ever made.. They damaged enough of that hairnet like nerve system that makes the stomach work.. that My Mayo GI Doctor called it Post operative gastroparesis.. Every meal is a challenge.. the best you feel each day is in the morning when stomach is empty... I had lost 50# before going up to Mayo.. to have them give me a way to cope.. I have gained back 40#.. but it is a battle every day .. Mayo prescribed a Mirtazapine to make me want to eat... and I know I have to eat.. everytime I go through the kitchen.. put something in your mouth.. pack a snack bag to go to work.. eating out gives you twice the food you can eat.. and not be bloated.. but You know and I know eating is not optional.. it is a requirement.. When I have guests, not often... they are amazed I don't weigh a ton.. but Vitamin Pills, generic Nexium, probiotics, gas-x..keep me going with some stability... Good Luck.. Mayo told me the Nissen could NOT be taken down.. We are stuck with it.. Ken