← Return to COPD end stage: Anyone else?

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@waterboy

I AM CLOSE TO YOU, I'M RIGHT AT THE EDGE OF STAGE 4. 2L of O2 just at night, some coughing not much tho, very little mucus and my fv1 is staying pretty steady, it is the build up of co2 that bothers me the most... that is where pursed lip breathing comes in. I take 3 nebulizers a day, DUONEB X4, BRAVANA X 2, BUDESINIDE X2, ALBUTERAL RESCUE INHALER ALBUTERAL and has me on AZITHERMYCIN. Have you been tested for ALPHA 1? I am almost 72 and next july 1 will celebrate 50 yrs married to an angel, don't tell her I said that. I noticed you keep mentioning GOD, he is a team mate, not a director, he needs your help, just like your DR does.

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Replies to "I AM CLOSE TO YOU, I'M RIGHT AT THE EDGE OF STAGE 4. 2L of O2..."

Thank you so much for responding back to me. It's so good to have someone I can talk to . I have no idea what some of the things you are talking about. I haven't seen the Pulmonologist yet so I'm literally clueless on this disease and what I'm about to face. I have no idea. If I didn't have all this lung congestion I would think I was fine. But I have no idea how to get rid of it or how to get rid of it. My family doctor doesn't treat me for the disease. He only treats me when I get sick with bronchitis and unfortunately he doesn't show much urgency when I do get bronchitis. It was over a week before he could see me and I had to keep calling just to see if he would call me in an antibiotic. Anyway, I just feel very lost in this disease. I'm sure the Pulmonologist will be able to answer all my questions and get me on the right medications that should help me. Right now I'm just grasping at straws and seeing what works. And so far, nothing seems to work consistently. He gave me some samples of things but you know they are only for a few days and hard to tell if they really work. I think they give them to me just to see if I can take them without ay side effects I'm terribly anxious even though I try so hard to leave it in God's hands. But thank you so very much for listening and for offering any advice you can give me. And, I'm so happy that you have an angel on your side to help get you through this. Unfortunately my family act as if I just have a cold and never takes any time to help me, except for my one granddaughter who can't do enough for me when she comes home. She lives in Nevada and she's so wonderful to me when she does come home.
I guess as long as I'm walking and talking I must be OK. And I do try to keep things as normal as possible around them, so I really can't blame them if I don't speak up. I'm not one to ask for help. But thank you so much for all you've done for me. It means more than you'll ever know. I hope you'll share with me anytime you think it might help me and I'll keep you posted on what my Pulmonologist says when I finally get in to see her in November. I'll continue to pray for you and for your wife. She needs prayers too for strength, patience and guidance. She is a very Godly person and she will be blessed. I pray you continue to do well and take good care of yourself. .God bless you............Shirley.