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Please Share your MAC and Bronch Success Stories - However Small

MAC & Bronchiectasis | Last Active: Apr 22, 2024 | Replies (66)
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@n4seth

I used the information in Dr. Falkinham’s Reducing Exposure. I contacted Mary Jo Benak at mj.benak@aqua-tools.com. I had to order a box of 10 but so far the first one is lasting over two months and I expect it to go go three or more. The total cost for all 10 with shipping was $512. The shower head just screwed into our existing handheld hose. I think I was the first individual customer-normally they sell only to hospitals. I was worried about low pressure and low flow but it works great. I still am careful in the shower not to let it get too hot and steamy. Also based on Dr. Falkinham’s info we turned our hot water heater up to 135 degrees. I keep signs posted in all the bathrooms warning visitors that it is hot.

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Sue, Volunteer Mentor | @sueinmn | Sep 18, 2021

Good idea putting up the caution signs! We also have a limiter on the handle of the guest shower, to keep it from being turned on too hot. And my little grandsons are closely monitored in the bath & when washing hands. The "upside" is the very hot water in the washer is great for sanitizing bed linens, towels and kitchen linens.
Sue

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lora jo | @ljfoo | Sep 19, 2021

Thank you Seth for the info about medical grade shower heads. Did your health insurance not cover the costs? It's a hefty price tag.
And here's a question for all: I have a tankless on-demand water heater. I've turned it up to 135 degrees F as you and Sue suggest. When the water is in a tank that's always at 135 degrees, it kills the MAC. But when it comes on-demand, how does that work? After I've run the water to warm it up (and catch it in buckets to water the garden) and the water gets to 135 degrees, does the MAC die instantly upon contact with 135 degree water as its coming through my shower head?

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