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DiscussionLiving with Neuropathy - Welcome to the group
Neuropathy | Last Active: Oct 27 5:51pm | Replies (6152)Comment receiving replies
Replies to "Hello Scott @revfluegel, Welcome to Connect, an online community where patients and caregivers share their experiences,..."
John, I am taking many over the counter supplements; Alpha Lipoic acid, L-carnitine, Turmeric, Omega 3,6,9, Vitamin D, CoQ10, B12. Up to this time I have refused to take Gabapentin or Lyrica, because of there side effects.
Hi Scott,
I am relatively new to mayo connect (about 6 days ago) and I was given the same identical diagnosis by Mayo in MN. I said axonal what?? My motor skills in both legs is the biggest challenge. Mayo told me not to take Lyrica and Gabapentin created angry issues. I find it frustrating because I do not know of anyone else that has this and I reside in a low populated beach community. No known cause for me means no treatment plan. Most things, I've found out on my own. Neurologists kind of shrug their shoulders. So, you are no alone with this and I hope you can manage through this. Not easy, that's for sure.
John, Thank you for responding to my post. The information on the VA sight is minimally helpful, since I have already accomplished registering on the airborne hazards registry. I have been through the VA system since I retired in 2013 and have had no resolution to the diagnosis of idiopathic sensorymotor peripheral neuropathy. I am hoping to find out what caused my neuropathy and then a more focused treatment, not just treating the symptoms. I would like to keep PN from progressing up my legs and arms.