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Living with Neuropathy - Welcome to the group

Neuropathy | Last Active: 1 day ago | Replies (6021)

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@revfluegel

Hello, my name is Scott. I have been diagnosed with Idiopathic Axonal Sensorimotor Peripheral Neuropathy. I believe this is due to deployments to Afghanistan and Iraq. My legs often feel like bugs crawling around just under the skin and electric shocks traveling through them. I have been taking several supplements for many years.

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Replies to "Hello, my name is Scott. I have been diagnosed with Idiopathic Axonal Sensorimotor Peripheral Neuropathy. I..."

Hello Scott @revfluegel, Welcome to Connect, an online community where patients and caregivers share their experiences, find support and exchange information with others. @egayle187 @jenniferhunter @suzylulu and other members have discussed similar symptoms of feelings like bugs crawling around under the skin and electric shocks and may be able to share their experience with you.

I also take supplements to help with my idiopathic small fiber peripheral neuropathy. I shared my story in another discussion which you might find helpful - Member Neuropathy Journey Stories: What's Yours?: https://connect.mayoclinic.org/comment/310341/

You mentioned you believe your neuropathy may be related to your service deployment in the middle east. The VA has some information that might be helpful if you have not already seen it - Airborne Hazards and Burn Pit Exposures: https://www.publichealth.va.gov/exposures/burnpits/

Do you mind sharing what supplements that you are taking and if you are also taking any medications to help with your neuropathy?

I recently read if a new drug which in trials proved to be superior to Lyrica with very little if any side effects. It is called Mirogabalin but I am nit sure if it is available in the U.S. I believe it was developed by a Japanese pharmaceutical co. It is a drug for neuropathic pain. You can Google it to find out more. Which supplements do you take? My neuropathy began like yours, those symptoms have improved greatly over the past 3 years, I take R-alpha lipoic acid and ALCAR, minimal carbs and sugar, no alcohol and exercise plus I take 300mg. gabapentin at night.