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Chronic GVHD ~ Let’s talk about it!
Bone Marrow Transplant (BMT) & CAR-T Cell Therapy | Last Active: Nov 15, 2022 | Replies (68)Comment receiving replies
I’m so grateful for all of you! Love some input on if anyone has had gallbladder issues? I’m a caregiver for my juvenile onset type 1 diabetic/ kidney failure stage 4 for my sister. Diabetic for 50 years. Her doctors have never mentioned gallbladder. Issues with stomach and severe back pain/ bathroom issues (TMI) . Hemoglobin 5.8 required blood transfusion. Couldn’t find where she or if is bleeding somewhere. New word for my list Hyda nuclear scan which test for slow leak in an organ. Doctors never mentioned maybe a small bleed out in an organ. A doctor mentioned that new word above. Her numbers aren’t stable even after transfusion. Please share your experiences. I’m contacting a G.I.fingers crossed. P.S. working on not being do wordy !
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Hi Cathy, I was just reading over some of your other discussions about your poor sister and all that’s been going on in her life. With her diabetes, kidney failure and now all the agony of these digestive issues she must be feeling so miserable! A hemoglobin of 5.8 is super low! I’m betting she felt like moving at a snail’s pace!
You’re very loving and generous to be so dedicated and committed to her health and medical care. Caregiving can be pretty stressful so I hope you’re also taking time for yourself to decompress!
Just a quickie…don’t worry about being too wordy! Think of us as all sitting around the kitchen table with a cuppa in the morning. In my group of family and friends we’re never economical with words. A good chat is how we help each other. It’s all good!
With your sister’s unexplained possible blood loss resulting in a low Hgb level, did she by any chance have her Covid Vaccinations? There are discussions in our forum with members who have had the virus or vaccines and are experiencing similar symptoms with low hemoglobin or low iron levels in their blood. Most have had tests and scopes to determine if there is a slow blood leak somewhere only to find it is related to the vaccine. I’m certainly not implying that this is her situation but it might be something worth mentioning to her PCP
https://connect.mayoclinic.org/discussion/iron-depletion-in-blood-and-covid-vaccine/?pg=7#comment-625176
I’ve not had any gall bladder problems personally. But the test your sister’s doctor mentioned is called a HIDA scan. I posted a link from Mayo so you can see what that’s all about.
https://www.mayoclinic.org/tests-procedures/hida-scan/about/pac-20384701
Do her doctors suspect the gall bladder for her stomach and digestive issues?