I’m very sorry that you’re battling both your health and your insurance. Our country’s medical insurance, or often lack there of, is woefully unjust and unequal. I had fabulous insurance when I was employed, but lost it when I had to resign as I got too ill to work. Have been only doing contract work since and now on Medicaid, which many doctors do not accept and you don’t get approved for a lot tests and procedures.
As a patient, I do not have much advice to offer for your health issues, other than to try to remain positive and keep pushing your providers for answers. Doctors can often switch up orders for tests so that insurance providers will approve them So, I’d recommend you keep pursuing the MRI. An MRI is often key to ruling out what is or isn’t the cause of one’s neuropathy.
Have you had the gamut of blood labs to also try to diagnose what you may have? Also, have you sent in an appeal to BCBS? I did that twice, wrote up all my issues, why I needed the procedure, stated that my doctor says I need the procedure, I couldn’t afford it, etc., and I won.
I hope you find answers soon.
I have had just about every bit of blood test done and many other tests and x-rays yet all negative except two years ago a MRI of my neck showed cervical stenosis with herniation and myelopathy as well as narrowing of spinal fluid on both sides of vertebrates in heck.
Good news just received Tonight!! My primary care doctor appealed to BCBS and won for MRIs on spine and neck. This was after three denials of these MRIs. My doctor is going to refer me to Mayo so hopefully they are willing to help me get a diagnosis.
I'm starting to believe it is autonomic nervous system disease. Horrible. These symptoms are relentless and scary.