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Living with Neuropathy - Welcome to the group

Neuropathy | Last Active: Apr 25 10:43pm | Replies (5972)

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@libbye

Hi! My name is Libby and my husband is suffering from peripheral neuropathy mainly in his lower legs and feet. He doesn't have an accurate diagnosis. The doctors at UK Medical Center thought maybe it was CIDP but are not sure because the EMG test did not confer.
Anyway, he can not stand to sit for more than a few minutes before the pain in his behind is terrible. We have a 12 hour drive to Mayo in October. He will be lying down in a transport vehicle most of that time. Can anyone give me an idea what I could do to lessen the pain when sitting. He has lost most of his core strength. We are working on that before we come to Mayo, but not much help so far.

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Replies to "Hi! My name is Libby and my husband is suffering from peripheral neuropathy mainly in his..."

Hello @libbye, Welcome to Connect, an online community where patients and caregivers share their experiences, find support and exchange information with others. I know it must also be difficult for you to know your husband is in so much pain and not know how to help him. Has your husband tried something like a donut pillow with a hole in the center (orthopedic donut cushion) to see if that helps with pain when sitting?

I would try a circular, hole in centre, inflatable cushion. I works for me. Good luck!