← Return to Autonomic nervous system disorder: No diagnosis or help yet

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@joannemm30809

Thank you for responding and doing that and connecting all those threads of conversations with other groups for me. I've been suffering going on 2 years November 2019 and it seen several neurologists and endocrinologist and cardiologist and primary care doctors and been in and out of the hospital and had tons of tests done except for an MRI of my spine and lots of blood work I've done and my gastro doctor today agrees with the first heart doctor from 2 years ago that I've got some type of autonomic nervous system breakdown but like I said I can't see where I fit into any of the 15 categories for Dysautenonia so I'm wondering if autonomic nervous system disease and malfunction can be present without having to fit into one of those 15 categories?

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Replies to "Thank you for responding and doing that and connecting all those threads of conversations with other..."

You're asking all the right questions, Joanne. These are questions to ask of a specialist team of doctors. Fingers crossed that you'll get an expert team dedicated to you at Mayo Clinic. I suggest making a list of questions. And keep a journal of symptoms and triggers.