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Autonomic nervous system disorder: No diagnosis or help yet

Stroke & Cerebrovascular Diseases | Last Active: Mar 25, 2024 | Replies (42)
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@colleenyoung

Hi Joanne, I merged the 3 discussions you started into one discussion that is visible in 3 related groups:
Cerebrovascular Diseases
Neuropathy
Heart & Blood Health

I did this so your story is in one place for you and others to follow, and so it is visible to all relative members. I, too, hope that you can get to Mayo Clinic for answers.

I wonder if fellow members @johnwes5819 @jenniferhunter @slynnb @adamek3638 @widman @neeci may have experiences with dysautonomia to share with you.

Dysautonomia International has a useful resource in their Patient Advocacy Tips page. https://www.dysautonomiainternational.org/page.php?ID=108

It is really hard work to get answers. I hope member experiences and this information helps.

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Replies to "Hi Joanne, I merged the 3 discussions you started into one discussion that is visible in..."
joannemm34293 | @joannemm30809 | Sep 16, 2021

Thank you for responding and doing that and connecting all those threads of conversations with other groups for me. I've been suffering going on 2 years November 2019 and it seen several neurologists and endocrinologist and cardiologist and primary care doctors and been in and out of the hospital and had tons of tests done except for an MRI of my spine and lots of blood work I've done and my gastro doctor today agrees with the first heart doctor from 2 years ago that I've got some type of autonomic nervous system breakdown but like I said I can't see where I fit into any of the 15 categories for Dysautenonia so I'm wondering if autonomic nervous system disease and malfunction can be present without having to fit into one of those 15 categories?

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