Hi Loula, Sounds as though you are following a similar path to me, but at least your tumors are shrinking, so stay positive and remain as active as you are able. Don't give up hope, as the oncologists have a number of options still.
I have tumors in both lungs and central lymph nodes, and a MAC infection too. I was put on Keytruda, Alimta and Carboplatin in December , but my tumors were still growing so I was switched to Ramucirumab and Docetaxel in June, on which I found the side effects more uncomfortable, and most of my hair fell out the first week! That did nothing for me either so I was taken off last month and switched to the Big 3 for MAC. Don't be disheartened by my story-CT and PET scans do not show tumors and MAC any different, so the doctors do not know, but one or the other is spreading and cannot be treated at the same time, hence the switch for me for a month or two to see what happens.
Keep smiling, praying and be positive.