← Return to Polymyalgia Rheumatica (PMR): Meet others & Share Your Story

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@barbq

Hi Dalby, we must be twins! I turn age 80 in November, still have PMR, also Lyme. I took myself off Pred for PMR in August after 7 months, but do daily massage & exercise of my achy hands & arms & use heat when it’s bad. I’m allergic to aspirin and NSAIDS so use only liquid Tylenol for pain. After just ONE doxy pull I went into anaphylactic shock, had to go to ER. Since then I’ve had anaphylaxis twice more so can’t get the Covid vaccine, which could kill me. I’m also vegetarian, eat no meat or fish or other seafood, but do eat eggs and dairy. I have a big delicious multi veggie salad every day! I have never smoked, used drugs or alcohol. To keep flexible so as to prevent falling, I do my own regimen of daily full body stretching against my kitchen counter and door jams (if I got on the floor I wouldn’t be able to get up!). Point being, I feel like I know my own body better than any doctor, so by doing research, keeping a positive attitude, prayer, and trying to make wise choices, my life is very good in spite of aches and normal age limitations. Life seems to be a 24/7 journey of personal discovery and renewal. I believe we all have answers within ourselves. Keep searching, trust yourself, and most of all, keep the faith! You can do it! 😊

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Replies to "Hi Dalby, we must be twins! I turn age 80 in November, still have PMR, also..."

Thank you for sharing. I have osteoarthritis with 2 knee replacements. I too am careful about staying flexible. I eat a balanced diet, have an occasional drink, but never smoked or used drugs. I have no known allergies. We have a YMCA in town and the Erie Canal Towpath across the street and a state park in our back yard. This gives me plenty of opportunity to bike, walk, swim, and participate in Active Older Adult classes. We have to know our bodies and advocate for ourselves!