← Return to Polymyalgia Rheumatica (PMR): Meet others & Share Your Story

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Profile picture for John, Volunteer Mentor @johnbishop

Hi @tinman2020, I would like to add my welcome to Connect along with @colleenyoung and others. After I was diagnosed with PMR by a Mayo rheumatologist, I was started on 20 mg of prednisone daily. It took away all of my aches and pains but then I started my slow journey of tapering off of prednisone. It took 3-1/2 years going slowly. One of the things that helped was keeping a daily pain log which I recorded how much pain I felt on a scale of 0 to 10 along with the dosage of prednisone I took for that day. This allowed me to look back over time to see if I may be trying to taper too fast. My rheumatologist did give me a suggested tapering schedule but also told me to listen to my body and not go down too fast.

After I was able to taper off I went 6 years before my PMR came back. The second time I started looking into additional changes I could make that may help reduce the inflammation to help with the PMR. I started eating healthier, tried to exercise a little each day and just make better choices day by day. Here's some information that you may find helpful -- Diet and Lifestyle Changes That Can Aid in the Treatment of Polymyalgia Rheumatica: https://arthritissj.com/diet-and-lifestyle-changes-that-can-aid-in-the-treatment-of-polymyalgia-rheumatica/

Are you able to share a little more about what treatment you are currently following and what you have tried?

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Replies to "Hi @tinman2020, I would like to add my welcome to Connect along with @colleenyoung and others...."

@johnbishop It's interesting to meet you here since you've been most helpful in the neuropathy group. I may be starting a new journey now with PMR in addition to small fiber neuropathy (also, a fib, but that's another story). I will the diet and lifestyle changes. My daughter is urging the Mediterranean diet.