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Living with Neuropathy - Welcome to the group

Neuropathy | Last Active: Oct 27 5:51pm | Replies (6152)

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@johnbishop

Hello @paradisejim, Welcome to Connect, an online community where patients and caregivers share their experiences, find support and exchange information with others. There is another discussion you may want to read through to meet other members discussing diabetic neuropathy - Diabetic Neuropathy progressing?: https://connect.mayoclinic.org/discussion/diabetic-neuropathy-progressing/

I have idiopathic small fiber neuropathy and posted my story in the following discussion along with the neuropathy stories of other members. This discussion might also be helpful to learn what others have shared helps them.
-- Member Neuropathy Journey Stories: What's Yours?: https://connect.mayoclinic.org/discussion/member-neuoropathy-journey-stories-whats-yours/

I think music and meditation helps a lot of us and provides needed relief. I've had cramps in my leg and arm muscles but I'm not sure they are related to my neuropathy. I think for me it happens a lot when I don't drink enough water.

The Foundation for Peripheral Neuropathy has some good information on alternative methods that may offer some help for your neuropathy - https://www.foundationforpn.org/

Have you tried any alternative or integrative therapies?

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Replies to "Hello @paradisejim, Welcome to Connect, an online community where patients and caregivers share their experiences, find..."

Hi I have had neuropathy in my feet since my tkr 10 months apart in 2016 and 2017. I have had 3 decompression surgeries on my tarsal tunnel nerve to not avail. I believe it is my gait since knee replacements. No matter how many times they decompress nerves I walk and compress them again. I do not have diabetes and blood work during all this has been good. Vitamin B counts are good. I believe it is simply a nerve I lean on when I walk. I have orthotics and very flat over pronated feet. I am at wits end as to what type of dr to see now. Seems podiatrists don’t want much to do with nerves..I am perfectly healthy but this is very debilitating and ruining my life. Any suggestions???