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Living with Neuropathy - Welcome to the group

Neuropathy | Last Active: Apr 25 10:43pm | Replies (5972)
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@paradisejim

Hi I am Jim,
I am living in Arkansas and I have diabettes for 4 years I am managing it pretty well now but in the past I was not and I was getting high blood sugar levels 500, 600. I was in the hostpital and had a 718 blood sugar level very great full I did not die.
But I did get diagnosed diabettes neuropathy. I have it in my feet.
And my muscles all over my body I take 1200 mg gabapentin 3 times a day and it helps but I am still in pain when I move
I like to remain still and listen to ambient music and meditate that helps.
I do have a question do any of you have muscle pain from their nueropathy I sometimes think my muscle pain could be caused by some other illness ? Thanks for reading and any replays are welcome.

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Replies to "Hi I am Jim, I am living in Arkansas and I have diabettes for 4 years..."
John, Volunteer Mentor | @johnbishop | Sep 15, 2021

Hello @paradisejim, Welcome to Connect, an online community where patients and caregivers share their experiences, find support and exchange information with others. There is another discussion you may want to read through to meet other members discussing diabetic neuropathy - Diabetic Neuropathy progressing?: https://connect.mayoclinic.org/discussion/diabetic-neuropathy-progressing/

I have idiopathic small fiber neuropathy and posted my story in the following discussion along with the neuropathy stories of other members. This discussion might also be helpful to learn what others have shared helps them.
-- Member Neuropathy Journey Stories: What's Yours?: https://connect.mayoclinic.org/discussion/member-neuoropathy-journey-stories-whats-yours/

I think music and meditation helps a lot of us and provides needed relief. I've had cramps in my leg and arm muscles but I'm not sure they are related to my neuropathy. I think for me it happens a lot when I don't drink enough water.

The Foundation for Peripheral Neuropathy has some good information on alternative methods that may offer some help for your neuropathy - https://www.foundationforpn.org/

Have you tried any alternative or integrative therapies?

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