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Pancreatic Cancer Group: Introduce yourself and connect with others
Pancreatic Cancer | Last Active: 20 hours ago | Replies (1435)Comment receiving replies
Hello again. My husband is nearing his 8th chemo treatment with Folfirinox and we are now told he could go longer. This was the first time it was mentioned. I am wondering how many folks go longer than 8 and what determines how long? The chemo is challenging. Its the cycle of knowing when the bad days are coming and just trying to get through them. As a caretaker I find massage helps. Good wishes to all out there dealing with this. Anne
Replies to "Hello again. My husband is nearing his 8th chemo treatment with Folfirinox and we are now..."
My wife had 9 Folfirinox treatments before SBRT and surgery. She was scheduled to get 4-6 more Folfirinox treatments after surgery but that wasn't possible because she was too weakened post surgery and covid lockdowns closed the treatment centers. My wife was getting treatments about 2 cycles behind another patient we learned about. He quit the treatments after 6. The hand and foot neuropathy is the limiting factor with the Folfirinox as I understand. My wife was taking mega doses of glutamine which seemed to help for a while. The good news was that Folfirinox was pretty effective for my wife and the original diagnosis of marginally resectable became resectable after treatment.
Praying for a good outcome for you and your husband.
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Anne, if I recall correctly, your husband is getting both chemo and then radiation to reduce the tumor so that it can hopefully be surgically removed. Is this still the case? Or has it been determined that surgery isn't possible?