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@petuniamom567

Part of the problem.Only large medical centers like Mayo work with specialized nutritionists. Result: You're on your own. Someone should be designing a diet that meets your needs. However, it seems that nephrologists in smaller communities neglect this aspect of CKD. I know. I have the same problem. Proper nutrition is essential and few doctors seem to pay attention to this fact. CKD sufferers need to know what they can and cannot eat and how to keep all their organs in the best shape possible so the disease does not progress. Care of the kidneys remains a mystery to me. Nutrition in local hospitals is definitely overlooked.. You can sign on to Amazon and find a selection of books. But then, who knows if what you're doing is really the right thing. Also, with CKD, be sure to ask your doctor each time another doctor prescribes a new medicine and review your old list. Many meds can harm the kidneys. Hope you stay stable.

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Replies to "Part of the problem.Only large medical centers like Mayo work with specialized nutritionists. Result: You're on..."

@petuniamom567 You're right about having to navigate our own way through the maze of dietary issues with kidney disease! This is why I have found Mayo Clinic Connect to be so valuable, as we share the things tht worked for us as individuals. It is important [for me, anyway!] to know there is a community of people willing to share their experiences. It helps me to know what others have found was beneficial and what just didn't work. When we live in outlying areas, and do not have access to top-notch facilities, coming here helps fill that gap, to hear from others. In the end, we each make our own decisions as to what will work best for us in our situation, and it helps to hear others' ideas.
Ginger