Hi TinMan, Mayo Clinic Connect is an online forum where you can connect with other people dealing with PMR, what works and what doesn't and more. Here you can meet people like @johnbishop @tsc @scpartain @mpstetson1 @pam52 @zaa @ncgal @legendts @peggyp and many others. We don't talk over the phone, but we can chat any time on this forum.

You mention that you are at your wit's end. What is your biggest challenge at the moment?

Hi @tinman2020, I would like to add my welcome to Connect along with @colleenyoung and others. After I was diagnosed with PMR by a Mayo rheumatologist, I was started on 20 mg of prednisone daily. It took away all of my aches and pains but then I started my slow journey of tapering off of prednisone. It took 3-1/2 years going slowly. One of the things that helped was keeping a daily pain log which I recorded how much pain I felt on a scale of 0 to 10 along with the dosage of prednisone I took for that day. This allowed me to look back over time to see if I may be trying to taper too fast. My rheumatologist did give me a suggested tapering schedule but also told me to listen to my body and not go down too fast.

After I was able to taper off I went 6 years before my PMR came back. The second time I started looking into additional changes I could make that may help reduce the inflammation to help with the PMR. I started eating healthier, tried to exercise a little each day and just make better choices day by day. Here's some information that you may find helpful -- Diet and Lifestyle Changes That Can Aid in the Treatment of Polymyalgia Rheumatica: https://arthritissj.com/diet-and-lifestyle-changes-that-can-aid-in-the-treatment-of-polymyalgia-rheumatica/

Are you able to share a little more about what treatment you are currently following and what you have tried?