Anyone taken Evenity (romosozumab) for Osteoporosis?

Posted by arlene7 @arlene7, May 27, 2020

Has anyone taken Evenity? I understand it’s only been on the market for a little over a year. I’m hoping it will help with my severe osteoporosis. Any information is helpful.

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@tinar

I would like to discuss the osteoporosis drug Evenity with anyone who has taken it or is taking it.

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Welcome Tina. I moved your question about Evenity to this existing discussion that @arlene7 started, asking for people's experience with this prescription drug for helping to manage osteoporosis. I encourage you to read previous post by members like @arlene7 @gabiquinn @pattyduerkop @elisabethv @sarahw02 @judith73 and @annonthecape. They can also help answer your questions.

Tina, have you started Evenity (romosozumab) or are you considering it?

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@colleenyoung

Welcome Tina. I moved your question about Evenity to this existing discussion that @arlene7 started, asking for people's experience with this prescription drug for helping to manage osteoporosis. I encourage you to read previous post by members like @arlene7 @gabiquinn @pattyduerkop @elisabethv @sarahw02 @judith73 and @annonthecape. They can also help answer your questions.

Tina, have you started Evenity (romosozumab) or are you considering it?

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My doctor has recommended that I take Evenity. I am undecided about taking it.

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@amandajro

Hello @gabiquinn and welcome to Mayo Clinic Connect. It sounds like you have swollen legs and stomach from Evenity. Is that right?

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No aún no comienzo a usarlo ya que tengo linfoedema y este remedio me haría muy mal

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My name is Tina. I am almost 67 years old. My t-scores are -3.3 at the spine and -3.0 for total hip. I am considering Evenity.
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I have the following questions for those on Evenity.
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What are your age and t-scores?
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Did you see a dentist before starting?
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Did you see a cardiologist before starting?
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How often do you have blood tests done to evaluate calcium levels in the blood?
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What side-effects have you had?

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I have just taken my fourth injection.(s). Admittedly, the first few injections were tough. So far, I have had less pain post injection and just generally feel less achy and tired. Positive statements are needed for people thinking about this drug.

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@judith73

I have just taken my fourth injection.(s). Admittedly, the first few injections were tough. So far, I have had less pain post injection and just generally feel less achy and tired. Positive statements are needed for people thinking about this drug.

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Me alegro que hayas comenzado con la terapia vos SOS tu 100x100 y si pones garra no hay estadística que te alcance,muy buena suerte y tu deseo sea tu sanación a pesar de lo que digan Ponele mucha garra saludos

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@gabiquinn

Me alegro que hayas comenzado con la terapia vos SOS tu 100x100 y si pones garra no hay estadística que te alcance,muy buena suerte y tu deseo sea tu sanación a pesar de lo que digan Ponele mucha garra saludos

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What type of difficulties did you have with the early injections?

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@gabiquinn

No aún no comienzo a usarlo ya que tengo linfoedema y este remedio me haría muy mal

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What is the concern with taking Evenity if you have lymph edema?

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got my 7th dose on Friday. so far so good, no side affects. anxious to see full results . 5 more to go.

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@judith73

I have just taken my fourth injection.(s). Admittedly, the first few injections were tough. So far, I have had less pain post injection and just generally feel less achy and tired. Positive statements are needed for people thinking about this drug.

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Hi Judith, thank-you for your reply. I hope your next injection goes well. Tina R

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