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Forteo vs. Tymlos: Which did you choose?

Osteoporosis & Bone Health | Last Active: 3 days ago | Replies (631)

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@windyshores

After I was in the hospital with afib which I believe was triggered by Tymlos (though I have had 4 episodes in 5 years), I talked with cardiologist, who said to do Evenity not Tymlos. I talked with two endocrinologists. One said retry Tymlos but start at a low dose and stay at the lower dose longer before ramping up. That MD did not tell me how to do it but left it to me.

My main endo, who is chair at a top hospital, left the decision of retrying Tymlos versus Evenity up to me but said retrying was "logical." He recommended compression stockings to treat low blood pressure. He also said start low, whatever I want, and ramp up slowly. He mentioned that I could also do, say, 3 clicks then after 15 minutes do another 1-3. I started with two clicks for a week, then added the thrid 15 minutes later, then moved to 3 clicks all together.

I have changed to the morning and take my blood pressure before the shot. So far so good. In a week I will go up to 4 clicks, a half dose. Docs want me to do this but don't give me specific instructions. I am going by how I feel. I will tolerate some side effects but not afib and I need to be able to function. I will let you know how it goes.

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Replies to "After I was in the hospital with afib which I believe was triggered by Tymlos (though..."

I hope you are doing well with the lower dosage and no side effects. Please keep in touch as you increase the dosage and how you feel. I am hoping soon the docs will let me try again and see how it goes. I would like to finish the while two years if I can. But my BP goes too high (185/105)and my pulse is>100. I hope to follow your example and ramp up slowly. Thanks for sharing much appreciated. My thoughts are with you as you start again. KLH

@windyshores It sounds like good suggestions from your doctors. I hope things will continue to go well with this strategy.
The fluid in my legs may be exacerbated by having put on some weight and by having to drink about 70 ounces of water a day to offset the effects of my immunosuppressant.
I would be happy if my BP went down from Tymlos but so far it has not. I am borderline high, no meds so far.

@kilh I only see my endo yearly also but she does keep me informed and she's very good about responding to questions on the portal. I hope after your next appointment you will be better informed so you know exactly what you are dealing with.
JK