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Post-COVID Syndrome is real

Post-COVID Recovery & COVID-19 | Last Active: Nov 15, 2023 | Replies (123)

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@nataliem

Since I am a post-Mono patient as opposed to post-Covid, I don't know for sure if I would be allowed to enter a recovery program. I also live in a rural area, so I would have to travel. My doctor has told me that I need an expert in infectious disease, but he will not refer me to the Cleveland Clinic, even though I have practically begged him. I just had blood work done, and I see this doctor again next month. If he still has nothing to offer me and refuses the referral, I will certainly be looking for a new doctor. I can't understand why a doctor who can't help me would refuse to refer me to someone who might be able to help. In the meantime, I'm working with a neurologist for my headaches, and also trying different strategies to improve my quality of sleep. So the struggle of trying to get well continues. I would like to get well so I can go back to work. I had to give up my teaching job, but if I could get well, I could still be a substitute. Thank you so much for reaching out and for caring!

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Replies to "Since I am a post-Mono patient as opposed to post-Covid, I don't know for sure if..."

How frustrating for you!
At least in early days, a number of the post-Covid programs were using the approach that the original cause of the symptoms isn't as important as finding methods to alleviate them.
Perhaps you can get a referral from your neurologist? Have you contacted the Cleveland Clinic about being seen without a referral?
Sue