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MAC & Bronchiectasis | Last Active: Nov 21 5:21pm | Replies (9354)Comment receiving replies
Replies to "Yes I was told, but can't remember the name. How are you feeling????"
@sophie1019 , Sophie, it would be a good idea to request ALL hard copies of your sputem lab results and keep a folder just for them. That way, you always know exactly what bacterium you have and can research it, or give info to new doctors. It also will keep track of what antibiotics work on your particular bacterium. Many of the hard copies contain the suseptability test results as well. The organisms that cause you infection can change, for example: I caught pseudomonas while on cipro and doxycycline for three years. My antibiotic was changed to specifically treat the pseudomonas. As years go by with chronic illness, it can be hard to remember what infection you had in which year; and if you change doctors, this info will be very handy. I am a little concerned that you know little of what is actually inside your lungs. The questions to ask your doctor is, What specie of mycobacterium is it, and what is the colony size. If they cannot answer these two questions, then the labs they are using are not testing the samples very thoroughly. Sometimes you have to demand that the lab test your samples 'all of the way', they can do it, but many take the shortcut.
I am not feeling too bad since they changed from Rifabutin to Rifampin. I consider myself lucky so far. I hope it continues to go like this. I think I am a little less tired the last couple days. I actually look
forward to taking my meds because I feel that I am actually doing something about the condition.