Connect
← Return to Small Fiber Neuropathy: What helps?
Discussion
Small Fiber Neuropathy: What helps?
Neuropathy | Last Active: May 17 2:03pm | Replies (284)Comment receiving replies
Hello @lisa965, Welcome to Connect, an online community where patients and caregivers share their experiences, find support and exchange information with others. I saw in your previous post that you mentioned taking Ciprofloxacin (?) and this was when your autonomic neuropathies started. I know that must be extremely difficult for you with all of the painful symptoms and not getting much help after seeing so many doctors.
Since you have seen so many different doctors, have you thought about seeking help at a major teaching hospital or health facility like Mayo Clinic where a multidisciplinary teamwork approach is used by doctors and specialists?
Replies to "Hello @lisa965, Welcome to Connect, an online community where patients and caregivers share their experiences, find..."
All my neuropathy issues were instant onset that 3rd day of cipro boom left here normal 4 hrs later i came home a different person n other than drs via med cab ive been locked up here since .i have no meds no pain relief no help ..im at the end of my rope ..the circus of drs ive dealt with is like medical negligence ..just ignore me ill go away .then no records nots in files ??bizarre ..instead of treating what testing proved i have .ive been sent for 100s of tests for everything on earth some multiple times .its not normal
Connect
Well i was at alb med totally useless its taken me another 4 yrs to get a referral and insurance to approve me to go to mass general ..now weve spent 2 weeks trying to get these drs to fax records .no one has any records ??ridiculous what ive been through wasted my life over a uti