Hi @lorraine59, I'm sorry to hear you are still having a rough time with your PMR after close to 5 years. My longest time on prednisone with PMR was around 3 and half years and it was pretty rough. The last six months I was going back and forth between 1/2 mg daily and 1 mg daily for a week to 2 weeks at a time before changing doses until I was finally able to stop taking prednisone with a minimum amount of pain/aching. My rheumatologist told me he had a patient who took over a year on 1 mg dosage until he could stop taking it.

Have you tried any other lifestyle or diet changes to help with your PMR pain? I know that really helped me the second time around with PMR six years after it went into remission and came back again. Here's some information that might be helpful if you haven't already tried it

-- Diet and Lifestyle Changes That Can Aid in the Treatment of Polymyalgia Rheumatica: https://arthritissj.com/diet-and-lifestyle-changes-that-can-aid-in-the-treatment-of-polymyalgia-rheumatica/