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Chronic GVHD ~ Let’s talk about it!

Bone Marrow Transplant (BMT) & CAR-T Cell Therapy | Last Active: Nov 15, 2022 | Replies (68)
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@alive

I have had GVHD off and on for the last five years. I was following varied diets during this time, including vegetarian and then vegan. I don’t see a correlation between diet and GVHD flair ups. We have a new immune system that is doing its own thing. No rhyme or reason most of the time. I personally focus on healthy diet and use whatever meds my oncologist prescribed for GVHD.

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Replies to "I have had GVHD off and on for the last five years. I was following varied..."
Lori, Volunteer Mentor | @loribmt | Sep 11, 2021

Thank you for this information about what you’ve discovered between the diet and GvHD! I really couldn’t correlate anything either from my diet. I try to do everything right. Though if I do cheat and have some Sun Chips, I find the salt irritates my tongue which never happened before.
But the other GvHD issues are so capricious, they’re obviously left to the whims of our new immune systems.
In a previous post you mentioned recently having scleroderma which is new for you. Do you mind sharing where this is occurring? Does it have anything to do with sun exposure?

I’m 2 weeks from being totally off Tacro and then my other meds so I’m concerned that I’ve been protected from some GvHD issues that might arise now that I’m going to be off. I’m always cautious in the sun but am curious as to skin issues and how they begin.

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