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I was recently diagnosed with Bronchiectasis.

MAC & Bronchiectasis | Last Active: Nov 19 7:40pm | Replies (181)

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@gafica

Yes, I have monthly sputum analysis. The level of MAC seen is decreasing from 4+ to “ few”. I am stopping my Aerobika use to see if that has been causing the blurry vision ( ie the increased pressure when exhaling forcefully may cause some adverse effects on the retina.) Recently, I do not produce anything but small amounts of clear mucus no matter how hard I exhale. ( I have never done any of the Forced Expiration Capacity measurements because of risk to my eyes ). I would be interested to learn if others have had any such issues with the use of Aerobika. My eye situation is pretty tenuous ( I have very high myopia, corrected with eyeglasses, etc over the years but have had many of the associated troubles ie severe glaucoma with a central scoot a in one eye now, retinal detachments, cataracts, very dry and oedematous corneas, etc which my opthalmologists have managed over the years). I do not want to risk further vision loss but I realize using Aerobika for the MAC is important. I am sure many others with MAC have had to make risk benefit decisions as well.

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Replies to "Yes, I have monthly sputum analysis. The level of MAC seen is decreasing from 4+ to..."

Since you are having side effects from the medication, and you have seen great improvement in the number of colonies in your cultures, maybe your doc would consider reducing the frequency of you medications to 3X/week? This could reduce the side effects you are experiencing.
Sue
Take a look at the treatment guidelines here: https://www.aboutntm.com/diagnosis/