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Having Difficulty Getting Diagnosis
Chronic Pain | Last Active: Feb 3, 2023 | Replies (46)Comment receiving replies
Thank you for the response. I am going to see a GI specialist this week to see if I can get any sort of help with my abdominal issues. I have not had any MRI's or CT scans as my GP doesn't want me to be exposed to radiation unless need be. The blood work checked my TSH levels, thyroid levels, blood counts, hepatitis check, as well as autoimmune activation and a c-reactive protein to check for inflammation. Other tests I have had include a chest x-ray to look for PE, or lung abnormalities, an ultrasound on my gallbladder to look for gallstones or other issues with it, as well as an upper endoscopy with biopsies of my esophagus, stomach and duodenum to look for any upper digestive problems. I also had a urinalyses to see if my kidneys could concentrate urine properly. Lastly I have had an EKG and Echocardiogram on my heart to see if I had sustained heart damage due to my problems. All tests have come back negative for anything other than slight inflammation of my stomach (pretty sure that's nothing new though). I've spent thousands of dollars on all of these tests to get no answers. I also have an appointment with urology in the beginning of October but that can't come soon enough. I am also scheduled to see a cardiologist but that is not until the first week of November. This whole situation has made me a wreck and is spiking my anxiety due to not having any sort of end in sight. I appreciate you taking the time to look at my post.
Replies to "Thank you for the response. I am going to see a GI specialist this week to..."
I have a neurological disorder that took over two years to diagnosis. I was everywhere. I even drove to John Hopkins which didn’t amount to anything as the doctor was disinterested. I had every blood possible. I was at a Lyme Disease specialist which was $550 out of pocket. I went to a medical doctor who was extremely hard to get into and took no insurance. It was $750 just for the consultation. They took 14 vials of blood which amounted to nothing. I was taken for a lot of money there. The only good thing was that my primary doctor believe there was something wrong as never gave up. I was finally diagnosed with small fiber neuropathy by some arrogant neurologist who was only ordering the skin biopsy because I had bladder issues. He said “I hope it comes back positive so people don’t think you’re crazy”. I put up with a lot if garbage in my two year quest to find a diagnosis. I suggest you never stop searching for answers. You know your body better than anyone. It may take some time but you will eventually find your answers. One last thing did your GI order a Smart Pill test read up on it, it’s worth a try.
Wow! I am suffering the exact same as you! I've even had urologist rule out any bladder or kidney issues....I have lost 80 lbs,veins throb,severe groin pain,faint,low heart rate,on n on. Had fecal impact twice requiring ambulatory. Every specialist passes me on to another...with differing of diagnosis w 2nd consults..I need a new direction to try..if anyone can offer
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@austin132 I also add my welcome to you here at Mayo Connect. It has to be very upsetting to have these tests and no answers!
You mentioned you deal with chronic pain issues throughout your body, even before the vaccination. If you care to explain, are you on any medications for those issues, or treatment? I wonder if there is a reaction between medications and the vaccine? What are the possibilities you can be referred to a good internist in addition to the urologist you already have an appt with?
Like @becsbuddy mentioned, keeping a journal of the signs you see will go a long way to helping a dr piece together the big picture. You have been very through in knowing what tests you have been through, and writing out what is going on may also help relieve some of the anxiety you are feeling. How does that sound to you?
Ginger