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Discussion(MAC/MAI) Mycobacterium Avium Complex Pulmonary Disease: Join us
MAC & Bronchiectasis | Last Active: Nov 21 5:21pm | Replies (9354)Comment receiving replies
Replies to "wow everything has gone so quiet, how is everybody doing?"
Hi Colleen, not sure how that happened, Am I a member now?
Thanks
Heather
Indeed. You are a member of the MAC group now, Heather. You can see which groups you follow on your profile page https://connect.mayoclinic.org/member/93086aa0097c55da17daa9122e2b08158c62b1427/?utm_campaign=hub_email&utm_source=email&utm_medium=comment_intro_userlink
I am doing really good! I’m still waiting for my results of the MRI done this wednesday!
As far as my dysphagia goes. I am using SYMPLY THICK it is a gel instead of the powder. I am doing really good with thick (nectar) liquid. I haven’t had sputum since. It might worth a try for those of you who has pneumonia often. I am glad that I finally
found the cause of my bronchiestasis!
My last bronchoscopy lab test confirm no MAC or any other bacteria. All were negative on the lab report. I’m still waiting to see my doctor because my appointments were postpone.
We are leaving Dec 3 for Florida. It would be a pleasure to meet those of you who live in Florida.
Nicole
@nick52 Nicole that is wonderful news! Seems like all of your diligence in taking care of yourself is paying off. How long will you be in Florida?
thanks colleen I have no idea how I became a non member.
Hi @heathert
I noticed that you are not following the MAC & Bronchiectasis group. That's probably why it seems that things have gone quiet. There has been activity in other threads in the MAC group just not on this one. If you follow the group, then you won't miss anything. Here's how:
1. Go to the MAC & Bronchiectasis group https://connect.mayoclinic.org/group/mac-bronchiectasis/
2. Cick +Follow (below the description of the group)
3. Select whether to receive an email each time a new post appears or to be notified about posts in an email digest only.
4. Click Update.
To learn more about following groups and optimizing how to use Connect, please see this step-by-step guide https://connect.mayoclinic.org/get-started-on-connect/
I hope you had a lovely Thanksgiving!