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ACNES, Abdominal Cutaneous Nerve Entrapment Syndrome
Chronic Pain | Last Active: Apr 10 3:00am | Replies (323)Comment receiving replies
My name is William and my wife suffers from chronic abdominal pain. We have been to ER’s like crazy and when I say a lot I mean easily 300-400 times in the last 4 years. Doctors do nothing run the usual tests and discharge her all while she continues to suffer from pain in the stomach coming from the right upper quadrant. Thru my own research I believe she has A.C.N.E.S What hospital or doctor do you have to go to where they can investigate her abdominal wall and give her this diagnosis. CT scans, MRI’s Ultrasounds, Endoscopies all come up negative. She has nausea and vomiting with this sometimes as well. Any help would be appreciated. We live in the Northern California area
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After a fall bladder removal, I went on a two year journey jumping around from various medical specialties to try and figure out where my pain was coming from. So many ER visits!! I finally found a general surgeon in a neighbouring community who diagnosed me with ACNES. Then I had to find someone to treat. I was able to get nerve blocks done in my own city, acupuncture, various pain killers etc. They have done all the scans and tried all the “things”. The only thing left was a surgical option with neurectomy. In my desperation I have read my fair share of research and found the name of a doctor who is performing the surgery on me in two weeks (Calgary, AB, Canada). I’m beyond thrilled and finally have hope again.