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DiscussionAnyone out there with Erythromelalgia?
Autoimmune Diseases | Last Active: May 12 7:45am | Replies (298)Comment receiving replies
Replies to "I have secondary EM and idiopathic peripheral neuropathy. I have found several things that improved my..."
I also have Erythromelagia., so far , I have nothing that controls it. I agree with some of your recommendations such as warm not hot showers or baths, but don’t understand some of the other points you have made. How does being around electrical devices or internet cause a flare?
Hello @crazyface5000, Welcome to Connect, an online community where patients and caregivers share their experiences, find support and exchange information with others. Thank you for sharing what helps you with your Erythromelalgia (EM). You've obviously been working on your list a long time.
Are you able to share any research tips for how you found the information that led to what has helped you?