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I was recently diagnosed with Bronchiectasis.

MAC & Bronchiectasis | Last Active: Nov 19 7:40pm | Replies (181)

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@sueinmn

Please let both your lung and eye doctors know as soon as you can. While it is more unusual, the other meds can have side effects on the eyes as well.

Specifically, too much Rifampin can cause blurred vision, and sometimes azithromycin as well. It is possible that 7 months of daily medications are building up in your system.

When my regimen was changed to daily, a couple of my dosages had to be lowered. May I ask if you are on the daily meds because 3X/week didn't work, or were you immediately started that way?

Sue

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Replies to "Please let both your lung and eye doctors know as soon as you can. While it..."

Thank you for your quick reply.I was never on 3x a week regime. I have been on Azithromycin 250mg/day, clofazimine 100 mg/day and Rifampin 600 mg/day for 7 months. Initially, for the 1st 2 weeks, my dose of Rifampin was 300 mg/day and then it increased to 600mg/day. I contacted my Respirologist who advised me to decrease the dose of Clofazimine to 50 mg/day ( as my brown skin color indicates it is accumulating in the body). He advised me that Rifampin could cause uveitis ( blurred vision, eye pain and redness) and to see my Opthalmologist, stop the antibiotics and call him immediately should I develop these symptoms. My Opthalmologist has advised me to see her as soon as the decrease in vision occurs ( as it lasts about 3 hours and my vision was back to normal by the time I saw her yesterday). She did not detect any abnormalities and knows the antibiotics that I am taking. She suggested I could have Amaurosis fugax (mini stroke involving the optic blood vessels) and is referring me for a Stroke work up. However, I do not have any risk factors for a stroke but am grateful to be assessed for this anyway. I feel it is the antibiotics ( Rifampin)and appreciate your very supportive comments regarding this. By the way, what a pleasure it was to read about the efficacy of Breathe Easy tea. It is my “ go to” beverage for coughing spells.