Disabling symptoms since distal bicep repair surgery. Any suggestions?
Hello everyone, I have had some very debilitating symptoms for the past 6 weeks since undergoing a distal bicep repair surgery and desperately need your help. Prior to the surgery I was an active, pretty healthy 48 year old. The surgery was conducted under general anesthesia in which I was put on a ventilator. All indications are the surgery went well. I wasn’t worried about the surgery in the least, and had debated even getting it repaired as it didn’t hurt and wasn’t impacting my golf game. However, a day and a half after the surgery I got a very strange feeling that led to what I believed was a panic attack (I have no history of anxiety/panic so I wasn’t sure). Long story short after 5 hours of debilitating symptoms my wife drug me to the ER. Over the next week the symptoms never left and I had two more ER visits. For the first week and a half I never managed more than 2 hours of sleep a night due to the symptoms. For the past 6 weeks it has been a daily occurrence with only a short break in symptoms here and there. The best way to describe the symptoms is a rush of something akin to intense anxiety/panic that makes me feel sick and often leads to vomiting (especially early morning). However, my heart rate actually has plummeted into the low 50s over the past 6 weeks and never gets over about 62 even during the worst of the attacks. I bought an iWatch to monitor my heart rate and it is always low. I have lost 35 pounds in 6 weeks despite eating, and eating pretty normally the past week. I also get why I can beat describe as an altered state of consciousness, disorientation that comes and goes. I’ve tested negative for pheochromocytoma and even underwent a psychiatric evaluation which was completely normal. The psychiatrist even asked why someone would send me there as this was clearly a medical issue. Simply put, none of this is thought driven and I do not feel anxiety has anything to do with it. I’ve undergone extensive blood work which hasn’t shown cause, and the doctors are baffled. The endocrinologist I saw was sufficiently alarmed to refer me to Mayo, but my referral was rejected. At this point I can’t work, can barely function and am in a constant state of misery. Trazodone helps me get about 5 hours of sleep but I wake up at 4am and the symptoms start immediately. Any suggestions that I can take to my doctor would be so much appreciated!
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Thank you! I appreciate the suggestions and am willing to try anything that brings any amount of relief. I’ll give it a shot!
Thank you, I appreciate the info. I am going to ask my primary about getting referred to iowa city as that is an easy drive for me. I am still walking over 20k steps a day and felt good enough this morning to even go for a run. It was a really good morning and early afternoon and I thought I may have turned the corner but then like a switch got flipped I started getting dizziness, nausea and vomiting this afternoon that has persisted through the evening. It is very frustrating and it makes it difficult to plan anything or go to work, much less enjoy life at the moment. Hopefully the good morning is a sign that things are improving though. I have to look at it with optimism. I do truly appreciate the feedback and input!
I am sorry to hear about your struggles after surgery. I upped my dose to 50mg last night and got 4:40hr of sleep. Was hoping for a bit more but it’s still much better than it was early on. I hope you recover soon. My arm is doing quite well it is these other issues that are beating me down. I just want to get back to being my old self mentally. Hopefully you make a full recovery and get back on your feet soon! Thanks for the response!
Thanks Jennifer, I did try melatonin and unfortunately it didn’t help my issues. I also was prescribed Hydroxine and Xanax, but neither did a thing but make me groggy. The symptoms were still all there and I would still wake shortly after falling asleep with the jolts. I agree on the sleep hygiene and I have been trying to do exactly that, along with getting to bed earlier. Thanks again for taking the time to offer suggestions and information. This has been a life-altering experience for me and I have been struggling to get a diagnosis, help, solutions etc. I really appreciate you taking the time to offer good ideas and paths forward.
Hi Steve. Reading this account makes me think of when I was getting dizzy because of my spine issues. Do you have any cervical spine issues? I was wondering if you may be experiencing vertigo? I am a spine surgery patient and my C1 & C2 would independently rotate that would suddenly bring on the dizziness if I looked upward when my vertebrae were rotated. It sounds like you are ok for awhile while you are running. Are you getting neck pain or muscle spasms? That would be something you could ask your physical therapist about and if there is a specific back muscle that is spasming. Since my spine surgery, everything has stabilized so this doesn't happen anymore, but I actually fell over once when it hit hard. Your PT can feel your neck to see if it is aligned correctly.
I am so sorry you are going through this. Some of your symptoms sound like maybe something happened to your autonomic nervous system while under anesthesia perhaps? Also, have you been checked for an infection? Not just at the surgical site but possibly somewhere else in your body? Hopefully you find answers and relief soon. I wish you well!
Thank you so much! I have had the same thought about ANS and I do think that is what happened with one or a combo of the drugs I was given, as does the psychiatrist I went to see. But I haven’t been able to get any kind of testing to confirm or rule it out. It has been a painfully slow process and I’ve had to fight every day to get into doctors. I did have CBC, see rate and c reactive protein blood tests done, along with a urine test to look for bladder infection. All showed no inflammation and no bladder infection. I have not had any further diagnostics done for specific infections, etc. thanks again for your response !
Thanks Jennifer. I do have some cervical spinal issues due to a past sports injury that certainly contribute to the poor balance and dizziness. I’ve had that for many years but it has definitely gotten much worse since the surgery. It also feels a bit different since the surgery. A different kind of dizziness if that makes sense?
@stevetaylor721 For me, vertigo had a component of movement, like the world was starting to spin around me. It is the way things look and feel if you had spun yourself around like a kid who was playing a game. The reason it was happening is because having a twisted or tilted vertebrae will stretch the vertebral artery that runs through the sides of the vertebrae. That affects blood flow to the brain. When you have a neck spasm or a spasm in the shoulder blade area, all that pulls on the spinous process of the cervical vertebrae and can move them. I would have to walk with my hand against the wall when this was happening, and other times, I just had to lie down with a heated wrap around my neck to help the muscles relax. Does this seem like the symptoms you are having?
Maybe Graves Disease triggered by the surgery?