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Forteo vs. Tymlos: Which did you choose?

Osteoporosis & Bone Health | Last Active: May 22 9:31am | Replies (585)

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@laurainmass

I have been on the full 80 mcg dose of Tymlos for 3 1/2 months but have dropped my dose to 60mcg due to side effects. Has anyone heard anything about effectiveness on a lower dose? I weigh only 102 pounds.

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Replies to "I have been on the full 80 mcg dose of Tymlos for 3 1/2 months but..."

My docotr said 1/2 dose could help, and that is only 4 clicks. Of course full dose is best but 6 clicks should have benefit according to my doc and posts I have seen elsewhere. I am still on 3 clicks trying to work up, and weigh the same as you!

@laurainmass I am glad to hear from someone who has cut their dosage back. At 60mcg do you still have the side effects or are they less or gone? What side effects did you have. I only weigh 96lbs now from 112. My PCP and PA took me off completely. But now I have three months supply and am approved for 18 months from Radius for free each month. So I really want to try again. But maybe I can convince my PCP to go with a lower dose to see if any side effects occur. Can you tell a difference in how you feel on the lower dose? I read somewhere a person was on 1/2 dose every other day to start. I would have liked a little more information on how that works. Hope you get a response about the effectiveness of the lower dose. Thanks for sharing. Maybe I will find a solution and get back to the nightly injection without any bad side effects. I wish you well and stay healthy KLH.

Good afternoon @laurainass, Welcome to connect. I am glad you found us and hope that you know we are patients, former patients, caregivers, and folks with experience that can be helpful to others.

I completed two years of. Tymlos this year and had no side effects. What are you experiencing? Which side effect motivated you to reduce the dose each day? Were you able to discuss the decision with an endocrinologist or even your primary care physician (PCP). Just in case you want to talk about your dose with medical professionals at the Tymlos manufacture, Amgen.....the number is 800 772 6436.

Knowledge is power in my book. Good luck.
Chris

@laurainmass I have been on Tymlos, full dose, since March with no really troublesome side effects. My heart rate may increase to somewhere in the high 70s BPM, and initially, I had next morning light-headedness, but that subsided after a few weeks.

What type of side effects are you experiencing?

@windyshores and @kilh I hope you both find some success with the lower dose and that it will help your osteoporosis. You both mention being small which makes me wonder if that makes it more difficult to tolerate and more apt to cause side effects. I am experiencing what I have referred to as "puffy belly", basically fluid retention in the belly area. I'm not thrilled about that but I am willing to tolerate it if Tymlos will give me better bone density.
JK