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Unfortunately, as of today, there is no cure for neuropathy. I was disappointed and a bit scared when I learned that although it is progressive, there is no way to bring it to an end. Some research is being done with nerve regeneration....since they take so long to heal but not in the near future.
What is happening that can help are the development of medications and treatments that can mitigate the symptoms of neuropathy. My #1, cannot live without, is MFR, myofascial release therapy. When the fascia in your body becomes restricted and stuck, pain erupts. I now have two sessions a week and may need more as my neuropathy progresses. The second thing that can work is a solid medical cannabis program with different dosages at different times during the day. For me, a morning pick me up starts my day, and an afternoon, relax and rest calms me down, and then another dosage type before bedtime ensures restorative sleep.
Since you have been living with PN for 30 years, how have you handled it? What do you need now that would make your quality of life better?
May you be free of suffering and the causes of suffering.
Chris
Replies to "Unfortunately, as of today, there is no cure for neuropathy. I was disappointed and a bit..."
The only thing that really helped me was a steroid shot I got for my knee. I helped my whole body. I was mostly without pain for two months and it started to come back slowly but had two more months of tolerable pain. It’s back and draining once again.
7 years post diagnosis idiopathic PN, First, my heart goes out to all those warriors who are standing tall in the face of horrible PN.
To date as far as I can tell...Yes PN has been cured and all you have to do is pay big $$$ for a pill, powder, electrically charge etc but what I mean is that there are disease gangsters out there who will take all your $ because they know you are desperate and vulnerable and they do not give a rat's ass about you your suffering...just your $. To my knowledge and I would never posture that I know more than what you might dig up on an internet search or talking with your doc there is at present NO CURE FOR NEUROPATHY. Those nerves are not just involved they are on their last breath. There is only one company WinSanTor that has done and is doing anything along the lines of "promising" research and in trials but, this does NOT MEAN THAT THERE IS A CURE. This is our fate currently. I wish it were different. Never the less, be hopeful, be active, be optimistic and be damn happy about life in general.
Love, Chris
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Hi Chris. I was wondering if you could explain what MFR treatments are. Thank you, Nancy.