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Unfortunately, as of today, there is no cure for neuropathy. I was disappointed and a bit scared when I learned that although it is progressive, there is no way to bring it to an end. Some research is being done with nerve regeneration....since they take so long to heal but not in the near future.
What is happening that can help are the development of medications and treatments that can mitigate the symptoms of neuropathy. My #1, cannot live without, is MFR, myofascial release therapy. When the fascia in your body becomes restricted and stuck, pain erupts. I now have two sessions a week and may need more as my neuropathy progresses. The second thing that can work is a solid medical cannabis program with different dosages at different times during the day. For me, a morning pick me up starts my day, and an afternoon, relax and rest calms me down, and then another dosage type before bedtime ensures restorative sleep.
Since you have been living with PN for 30 years, how have you handled it? What do you need now that would make your quality of life better?
May you be free of suffering and the causes of suffering.
Chris
Replies to "Unfortunately, as of today, there is no cure for neuropathy. I was disappointed and a bit..."
The only thing that really helped me was a steroid shot I got for my knee. I helped my whole body. I was mostly without pain for two months and it started to come back slowly but had two more months of tolerable pain. It’s back and draining once again.
7 years post diagnosis idiopathic PN, First, my heart goes out to all those warriors who are standing tall in the face of horrible PN.
To date as far as I can tell...Yes PN has been cured and all you have to do is pay big $$$ for a pill, powder, electrically charge etc but what I mean is that there are disease gangsters out there who will take all your $ because they know you are desperate and vulnerable and they do not give a rat's ass about you your suffering...just your $. To my knowledge and I would never posture that I know more than what you might dig up on an internet search or talking with your doc there is at present NO CURE FOR NEUROPATHY. Those nerves are not just involved they are on their last breath. There is only one company WinSanTor that has done and is doing anything along the lines of "promising" research and in trials but, this does NOT MEAN THAT THERE IS A CURE. This is our fate currently. I wish it were different. Never the less, be hopeful, be active, be optimistic and be damn happy about life in general.
Love, Chris
Myofascial release therapy? I’m googling now, sometimes it’s like every fiber of my body aches. Has anyone had Botox injections? I had it for cosmetic reasons once and I was more thrilled with the release of face, sinus and head pain I experienced.
I am a fairly new sufferer from neuropathy in my feet/lower legs. So far I've tried magnesium cream and other "healing balms" which provide welcome, but only temporary, pain relief. Today I visited my longtime sports massage therapist, who specializes in MFR. I had kept the visit because I thought "Well, even if he can't touch me below my knees, I can always benefit from some good hip/glute/lower back/shoulder work. But upon hearing my story, he asked if I'd let him start by working on my feet, where the problem seemed to be. Because I trust his skills implicitly, and because he promised to be gentle, I grudgingly said "Yes," and had an amazing treatment session. My feet and ankles feel looser, and I can actually wiggle my toes and point my toes for the first time in months. I felt so encouraged that I booked weekly sessions for the next three weeks. I would be thrilled, but not totally surprised, if this modality works for me -- thus far, this particular therapist and MFR have never let me down. I definitely don't want to go the gabapentin (or other) neuropharmaceutical pathway; nor do I want to get further sucked into the never-ending universe of balms/electrostimulation devices, etc. So I am encouraged to hear that someone here has had a positive experience with MFR and neuropathy.
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Hi Chris. I was wondering if you could explain what MFR treatments are. Thank you, Nancy.