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Mucositis

Head & Neck Cancer | Last Active: Sep 8, 2021 | Replies (8)

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@auntieoakley

@srm . I am sorry you are dealing with this, however there is help, there is a compounded liquid that is amazing. To help these heal. I know you are probably at your doctors appt. and they will be able to assess those mouth sores. As long as they are not fungal, they can prescribe it. Also I found that using children’s toothpaste or just baking soda helped them heal faster. I had a mouth full from the chemo. I suspect the short of breath and exhaustion is from the radiation. I wish I had a suggestion, but the truth is, you just have to let your body rest and heal. I was so tired every step at the grocery store was like I had run a marathon, and I took a couple naps to get through a workday. Did the doctor give you hope of relief for your mouth today?

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Replies to "@srm . I am sorry you are dealing with this, however there is help, there is..."

@auntieoakley
I totally understand the fatigue. The simplest tasks do me in.
It was a good visit today. To start, my CT scan showed no indication of any remaining cancer. The words of my oncologist “you are cancer free” 🙂
My chest CT scan shows no indication of the shortness of breath issue. Plus my respiratory testing came back normal. I am waiting for an appointment date to see a specialist.
The doctor prescribed a mouth rinse that needed to be filled by a pharmacy that does compounding. It’s called Dr. Akabutus. Apparently named after the doctor who invented it.
The bonus is that my insurance paid for it👍
Hopefully, it will help a bit.