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@sueinmn

Welcome back - you hit the right spot to continue your discussion.
Let's break this down...
When the bronchoscopy was done, mucus was collected and sent to be cultured. This takes 2-8 weeks to grow & determine which antibiotics your particular infection will respond to, so it will be a while before you have answers.

This confused me tested "positive for C anca a test for vasculitis but my doc said nothing showed up on my blood work" - definitely a question for the rheumatologist, and a whole different topic for consideration if vasculitis is diagnosed. May I ask if you know why this test was done?

As for the MAC infection migrating to your surgical site, if your lung problem is determined to be MAC, your pulmonologist should bring an infectious disease specialist into the discussion. In general, MAC confined to the lungs is not considered a high risk. I had two ortho surgeries on my hands while I had MAC, and the surgeon was not concerned at all that it would affect the site (and it did not.)

I am sorry you are going through this difficult waiting game - it just adds to anxiety, doesn't it? Please let me know what you learn from the rheumatologist.
In the meantime, be kind to yourself.
Sue

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Replies to "Welcome back - you hit the right spot to continue your discussion. Let's break this down......"

My pulmonologist called me last Friday and said that I tested positive for the Anca test. I think the speciman from the Bronchoscopy showed this but not sure, she said it was odd because it didn't show up on any bloodwork.

Anca is for vasculitis and my pulmonologist said I should see a rheumatologist and I have an appt. for Friday to do further tests

I had also had a lung function test at Stanford last week that came back normal. My primary doc has been out for the past two weeks and all I have is her nurse who keeps sadly saying that primary doc was worried because she thought it might be MAC. Here I am, hustling in these covid days to get appt. sooner than later.

I appreciate this site. Thank you!