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DiscussionChronic GVHD ~ Let’s talk about it!
Bone Marrow Transplant (BMT) & CAR-T Cell Therapy | Last Active: Nov 15, 2022 | Replies (68)Comment receiving replies
Replies to "Thank you. Your comments are reassuring. He was diagnosed with MDS Leukemia. On Christmas Eve 2019...."
I’m happy to have brought a little reassurance. Leukemia is a wild ride for sure, no matter which variety! I had AML and so far so good with the transplant doing its job to keep that arrested.
Mayo-Rochester is my Mother-ship too! Spent 4 months there as well and can’t imagine better care anywhere.
So rest assured, he has a great team and they’ll have his (and your) back forever. I was told repeatedly that ‘we’re married for life’ with our transplant team. I’m over 2 years out and still connected with follow up appts and communications with my doctor and my team. They are thrilled with every victory and ready to jump to the rescue for any issues.
Knowing what he’s gone through, I share your happiness that your husband is doing so well. When people ask me what it was like I always say, “It’s definitely not a walk on the beach!” 😉
When is your husband’s next follow up in Rochester?