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Just got second CT Scan says probably MAC. I am a K teacher

MAC & Bronchiectasis | Last Active: Sep 24, 2021 | Replies (21)
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@aima1234

Hi there again,
don't know if I do a new post or just continue this one. However, I have some questions to folks out there. I had my bronchoscopy about almost a week ago. I also got a phone call from my primary that I tested positive for C anca a test for vasculitis but my doc said nothing showed up on my blood work. Has anyone out there got a positive on an anca test out there? I was able to get an appt. with aa rheumatologist for Friday.

I also have a general question regarding MAC lung. I had an anterior hip replacement in May and am concerned about the infection going to the replacement. Anyone out there have familiarity with this stuff?

I. am still waiting for whatever will show up from the bronchoscopy. I am also back to teaching but just 4 hours this week. wearing an N95 mask and surgical mask over that. Trying to sleep 9 hours.

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Replies to "Hi there again, don't know if I do a new post or just continue this one...."
Sue, Volunteer Mentor | @sueinmn | Sep 8, 2021

Welcome back - you hit the right spot to continue your discussion.
Let's break this down...
When the bronchoscopy was done, mucus was collected and sent to be cultured. This takes 2-8 weeks to grow & determine which antibiotics your particular infection will respond to, so it will be a while before you have answers.

This confused me tested "positive for C anca a test for vasculitis but my doc said nothing showed up on my blood work" - definitely a question for the rheumatologist, and a whole different topic for consideration if vasculitis is diagnosed. May I ask if you know why this test was done?

As for the MAC infection migrating to your surgical site, if your lung problem is determined to be MAC, your pulmonologist should bring an infectious disease specialist into the discussion. In general, MAC confined to the lungs is not considered a high risk. I had two ortho surgeries on my hands while I had MAC, and the surgeon was not concerned at all that it would affect the site (and it did not.)

I am sorry you are going through this difficult waiting game - it just adds to anxiety, doesn't it? Please let me know what you learn from the rheumatologist.
In the meantime, be kind to yourself.
Sue

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