@joan912, Joan, I don't know anything about this.Has anybody else here? Have you tried 'Google' to see if there is any info there? I like to go to medical institution sites like Mayo Clinic, NIH, Cleveland, NJH, etc. for info sources because they are legitimate. Their sites allow you to look up diseases and treatments. You could enter in 'Amakacin Injections' and something should come up. Sometimes articles from the residing physicians will also come up. I like to read their publications because then you can get a firsthand account of how effective their treatment are or are not.

Thank you, Terri. I read several instances on this blog of folks who are on inhaled amikacin. My husband wants to add this to his regimen. I'm pretty sure the doctors at Kaiser won't be willing to do this, since they've already suggested he not take any drugs, though bronchiectasis has now been found in his other lobe, and he has fevers and night sweats again.

My pulmonologist put me on the inhaled amikacin ALONG WITH the meds as I have not cultured negative. I am pretty sure that this was from a recommendation from National Jewish to do so. Terry

@joan912, Joan, if Dr wants him on it, and Kaiser refuses, try hounding them constantly. Sometimes that works. Explain to them that what he has is considered an orphan disease. When that is explained to insurance companies, they sometimes will cave.

I was on inhlaed Amakacin and had next to no side effects, just hoarse in the beginning, so may be ok for your husband. Good luck.