Hello Linda, welcome to Mayo Connect. I’m glad you found our discussion on GvHD. Being the caregiver for someone with GvHD is a bit of a roller coaster ride for both of you, isn’t it?! Your husband’s a very lucky man to have you by his side to help weather one of the most challenging times of his life.
Congratulations on his one year Re-birth day. That’s a huge mile stone! It’s reassuring to hear he has such a great disposition throughout his hurdles with GvHD. Unfortunately, in all various shapes and forms, it is a pretty common side effect with our gift of a second chance at life.

It’s ok to be on Tacro and the other meds for a longer period. I’m 2 years, 2 months past my 2nd anniversary and just now tapering off the Tacro. It has kept me from the worst of any more GvHD events for which I’m grateful to my transplant doctor for taking this conservative approach. Eventually, the new immune system will acclimate to our bodies and calm down on its own. But in the meantime, prednisone is often the wonder drug to stomp out the little fires that pop up. I’m sorry to hear he’s having to take insulin right now but most of these side effects diminish or disappear when he’s off the prednisone.

If you don’t mind my asking, what led your husband to needing a stem cell transplant?