I have a question for those folks who go to the Mayo Clinic in Rochester. My husband has been diagnosed with MAC and bronchiectasis. He wants another opinion from a more specialized doctor than those we have here in Kaiser. I contacted the Mayo Clinic and he has an appointment on November 29. He will be seeing Megan M. Dulohery Scrodin, M.D. She specializes in NTM and bronchiectasis, among other areas. This seems to be good, but my husband, who is also a medical doctor, feels she may be a bit young and not experienced enough. He is wondering whether when you're seen there (at least initially), are you seen by the main doctor as well as others for the initial consultation? Also, what tests will be performed? He just had a CT a couple of weeks ago, so I do not think they'll schedule another one so soon.
On another topic, I was told that the tests would be taken over 2-4 days, and I'm scheduling 3 days, hoping that will be enough. It will be expensive to go there, but I want my husband to get all the tests that are required. One person who went to Arizona Mayo said they talked him into taking extra tests which ended up costing significantly more. I was quoted an initial cost of $5000 (all this will be out-of-pocket, Kaiser not granting a second opinion, and we're not on Medicare yet). I hope this will not be exceeded. I would appreciate anyone's experience with this.