Connect
← Return to Chronic GVHD ~ Let’s talk about it!
Discussion
Chronic GVHD ~ Let’s talk about it!
Bone Marrow Transplant (BMT) & CAR-T Cell Therapy | Last Active: Nov 15, 2022 | Replies (68)Comment receiving replies
I think mystery writer is your new calling, Lori. Excellent plot!
Very interesting about autoimmune diseases going away after stem cell replacement. Makes sense though. Doesn’t sound like a good option now certainly, but maybe offers some hope with future research, especially for the more devastating ones like MS and CFS. There are few medications that really work for most autoimmune diseases,
I take ursodial for PBC, although it doesn’t have a great track record. I think like 30% of those with PBC reject in the first year, then it increases, but not rapidly. My primary didn’t connect my symptoms which I had reported over many years, so that’s why it wasn’t diagnosed until I was in stage 3 liver cirrhosis. But, I’m very good to my new liver, so hopefully he’ll stay around for many years. Sjogren’s on the other hand has gone rampant after my transplant, never had any symptoms prior, so weird.
Replies to "I think mystery writer is your new calling, Lori. Excellent plot! Very interesting about autoimmune diseases..."
Connect
I was bummed to find out those books are already being written and someone told me CSI has had an episode or two with the same plot. LOL.
You’re so right, with time and research maybe there will be a future for stem cell transplants for more autoimmune diseases. Before that can happen, side effects of the transplant will need to be less dramatic. Now, however, it is not commonplace simply because it is grueling and comes with its own challenges.
Interesting, we share another drug…Ursodial. I’ve been taking that since transplant as a prophylactic to prevent liver issues.
Getting a second chance isn’t without some trade off is it? We’ll never fully be 100% of our former selves but it beats pushing daisies up from the underside. 😉