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Hole in Vagina

Digestive Health | Last Active: Oct 16, 2021 | Replies (16)

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@trishanna

@blinken So happy to hear you are doing so well. I think your story shows how important research is in helping with our own treatments. I have been hesitant to go outside our medical facilities but the non answers continue to pile up. All my only surgeon can offer is major surgery to "fix" a partial colon block. Last week, had a CT scan (9 or 10) with Contrast. Ended up with pain of a month ago. Third time I've thought fistula might be closing. Each time, some procedure insisted upon reopened it. I ask questions about diarrhea, colon problems, etc., and receive only vague answers. Have not been referred to a colorectal\prostrate surgeon at all. Think my surgeon thinks she knows it all. So, thanks to Colleen Young, I'm going to make an appointment with a Mayo colorectal surgeon. Do you think as I see a decrease in discharge vaginally that that could be a sign of healing? Are you instructed to avoid diarrhea, which is another area my medical team sabotages over and over. Hope I am doing the right thing, but I look like a refugee from a horrible concentration camp. Think if I survive my surgeon's wide open surgery, I'd spend the rest of my life in a nursing home. Look at the damage from the hysterectomy! Take care.

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Replies to "@blinken So happy to hear you are doing so well. I think your story shows how..."

Hi Trishanna, I'm so glad to hear that you will be seeing a Mayo specialist! I hope this is the answer to your prayers. I was also hesitant to travel away from my medical facility but as things progressed for the worse, I decided it was time to move on even though winter travel in Wisconsin can be dangerous. As to avoiding diarrhea, I was concerned that the bowel prep prior to the colostomy take down would re-open the fistula. But it didn't and I had no output from there at all. Yours might be in a different location from mine and a larger or smaller size so there are no guarantees in any of these complicated situations that our experiences will be the same. But we can commiserate and cheer each other on. It means so much to have people in your corner who care! Good luck to you. I hope you get some answers, even if it's "I don't know but I aim to find out" and I surely hope you can follow this path to the mending and ending of your medical issues. I had come to believe there would be no "fix" for me but happily, I was wrong. I hope the same for you.