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Just Diagnosed with Small Fiber Neuropathy

Neuropathy | Last Active: Jul 4, 2023 | Replies (235)

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@dianecostella

If you don’t have pain you are extremely fortunate it. I am in pain everyday. Most of the time it’s intense burning pain but sometimes it debilitating pain. It took me years to finally e diagnosed. I have autonomic small fiber neuropathy.

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Replies to "If you don’t have pain you are extremely fortunate it. I am in pain everyday. Most..."

I have had PN for 25-30 years and at first it was just tingling in my hands and feet, so I did nothing. It has slowly progressed until I have no feeling in my hands and feet (except for the constant pain in one foot), balance issues, can't drive a vehicle and am very reliant on my wife. I tried numerous prescription drugs for the pain and to sleep at night. Finally ended up with lyrica (3 times a day) and clonazepam before bedtime. I still have pain, but I can sleep at night.