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Erosive oral lichen planus

Autoimmune Diseases | Last Active: Jan 19 4:18pm | Replies (231)

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@bustrbrwn22

@artist01. Thanks so much! I actually have some tacrolimus that was prescribed for my rosacea but it burned on my face. I will try a little on my lips but I’ve seen contradicting things online. One says you can use on lips and eyelids another says you can’t. So your dermatologist was ok with using in your mouth? Then it must be ok for lips. Not sure if my eyelids are LP or rosacea. Have you ever used on eyelids? Awesome info. Thanks!!

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Replies to "@artist01. Thanks so much! I actually have some tacrolimus that was prescribed for my rosacea but..."

@bustrbrwn22 Hi Buster Brown. I'm like you - very leery of using Clobetasol in my mouth, since all the accompanying pharmaceutical info warns NOT to. However, if you research online, you'll see that other doctors and dermatologists advise it's use for OLP so I was more at ease with using it orally. I'd be very cautious about using it on your eyelids though. Too close to your precious eyes! Personally, I wouldn't.
I wish you could get a definitive answer on whether it IS OLP that you have. Even using Clobetasol on your outer lips seems a little scarey to me. OLP doesn't usually affect the lips themselves. Can you not seek out a dermatologist at a teaching hospital? Using that medication without a proper diagnosis might not be a wise way to go, without knowing for sure what you're dealing with.
I use white petroleum jelly USP ointment in a tube, or even coconut oil, to help my very dry lips. Good luck, Buster Brown.