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Living with Neuropathy - Welcome to the group

Neuropathy | Last Active: Oct 27 5:51pm | Replies (6152)

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@dollie

Hi group and John, still not sure what type of neuropathy I have but it sure does not belong here. I have terrible pain in my hands that last until the gabapentin kicks in, which sometimes seems forever.
I have pain in my feet and face also, I John got out of rehab, and I am learning to do things on my own, not easy, but has to be done, I can only get around with walker or wheelchair. I usually feel the best laying in bed, but as soon as my feet hit the floor, the pain starts. I am hoping you can give me some info and encouragement because I am running out. Thank you in advance.

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Replies to "Hi group and John, still not sure what type of neuropathy I have but it sure..."

Hello @dollie, Welcome to Connect, an online community where patients and caregivers share their experiences, find support and exchange information with others. I am happy that you have taken the first step to helping yourself become a better advocate for your own health. The more you can learn about your condition, the better questions you can ask of your doctors and hopefully help them determine the best treatments for you.

There is another discussion you may want to read through and learn what other members have shared helps them. I also posted my story in the discussion - Member Neuropathy Journey Stories: What's Yours?: https://connect.mayoclinic.org/discussion/member-neuoropathy-journey-stories-whats-yours/

The Foundation for Peripheral Neuropathy has some complementary and integrative therapies you might find helpful here - https://www.foundationforpn.org/living-well/integrative-therapies/

You mentioned you are on gabapentin now for your neuropathy pain. Have you tried any alternative treatments or therapies?